Health Research

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Pain stories: Young people with pain and their families needed to talk about how they make sense of pain

📥  HealthResSW

Researchers from the University of Bath are interested in talking to young people who experience pain and their families to help us understand what it is like for individuals and their families to live with pain and to learn more about how pain is understood.

Existing research studies have shown that living with ongoing pain can pose different challenges for young people and their parents as well as for other family members. However, what we know little about is how young people who experience pain make sense of their pain and what it is actually like to live with pain on a daily basis. Additionally, we also little about how pain in young people impacts on other family members and how pain is understood by parents and siblings.

In this study, Dr Abbie Jordan and Dr Elaine Wainwright are interested in asking young people and their family members to tell us how they make sense of living with pain and its impact on family life. Using Skype, Dr Jordan and Dr Wainwright will conduct interviews with young people and their families to understand more about how pain is understood within the family and how it impacts on the lives of individuals within the family.

As the study is focused on the experiences of family members, the researchers are keen to talk to:

  • young people aged 11-20 years who have experienced pain for at least three months and their family members.

In particular, they are keen to talk to at least one parent of the young person and any interested siblings.

If you would like to take part in the study or to find out more information, please email the researchers at painstories@bath.ac.uk

10 Responses to “Pain stories: Young people with pain and their families needed to talk about how they make sense of pain”

  1. Mrs Rhonita Hare on

    Dear Abi. I don't know if I can help in your study of pain in young people but I am a CRPS sufferer. If you think I can help please let me know.

    Regards

    Rhonita Hare

    • Samantha Warren on

      Dear Rhonita

      Thank you for your reply to the blog, I have forwarded your details on to the researchers.

      Kind regards

      Sam

  2. Mrs Charlotte Murphy on

    Hi

    Our daughter ,Ella who is currently 13 has experienced CRPS and had 2 individual residentials at Bath RNHRD in the past.She was affected from age 7 to 12 and is now back to normal and enjoying life to the full.CRPS is a terrible condition and affected the whole family hugely.We continue to support Amanda Nelson and team at CRPS UK and if you feel we could help then do please contact us.I have spoken to Ella about your research and she feels that she would like to help in any way to enable others understand the huge impact pain has on whole family and ultimately help others who continue to suffer.

    Many Thanks

    Charlotte Murphy

    • Samantha Warren on

      Dear Charlotte

      Thank you for your reply to the blog, I have forwarded your details on to the researchers.

      Kind regards

      Sam

  3. Heather MacLean on

    Daughter, 13 on tues 25 oct, will have had crps for nearly 3 years, live in Scotland, no siblings

    • Samantha Warren on

      Dear Heather

      Thank you for your reply to the blog, I have forwarded your details on to the researchers.

      Kind regards

      Sam

  4. Joanne Rees on

    My daughter has had crps in left leg for over a year. Presently on gabapentine for pain. She is 13. It's a nightmare coping with spasms and skin sensitivity on top of the normal burning sensation.

    • Samantha Warren on

      Dear Joanne

      Thank you for your reply to the blog, I have forwarded your details on to the researchers.

      Kind regards

      Sam

  5. Mrs Mandy Young on

    Our 12 year old daughter Megan was diagnosed with crps in July (her pain flared in April 2016 and she ended up on crutches - she has been off them now for 2 weeks). She has been in pain since Feb 2014 following a gymnastics injury where she tore a ligament in her right ankle.

    • Samantha Warren on

      Dear Mandy

      Thank you for your reply to the blog, I have forwarded your details on to the researchers.

      Kind regards

      Sam