Guest blog by Faye Bell, aFLAME Disability Network member
If you had told me a few years ago that I would be training for the 2026 London Marathon, I probably would have laughed. But here I am, running through rain, cold, early mornings and everything in between, all for a cause that means the world to me: Epilepsy Action.
My Epilepsy Journey
I’ve lived with epilepsy for over 25 years. It’s been a long road, full of challenges, uncertainty, and moments that have tested me more than I ever expected. But it’s also been a journey of learning, resilience, and growth.
I’m incredibly grateful to be able to say that I’ve now been seizure-free for two years. That progress didn’t happen overnight. It took the right support, the right information, and the right people in my corner. This support includes the members of AFLAME a supportive network here at the University of Bath for staff members living with a disability to discuss real change. This is a huge part of why I feel so strongly about giving back.
Why I’m Supporting Epilepsy Action
Epilepsy Action has been a constant source of help throughout my life with epilepsy. Their information, advice, community and campaigning have made such a difference not just to me, but to countless people who feel alone or misunderstood because of this condition.
Epilepsy still carries so much stigma and confusion. People don’t always know what epilepsy really is, how to respond to a seizure, or the impact it can have on everyday life. By running for Epilepsy Action, I want to help change that, even if it’s only in a small way.
My Marathon Journey
This year I set myself a goal: to push my limits and run not just for something, but because something matters. I’ve already completed two half marathons in 2025 and have two more coming up in early 2026. Training through winter is no joke! The cold does not care that I’m living with epilepsy or that I don’t have the energy to get out of bed. But every time I think about why I’m doing this, I keep going.
Every mile is a reminder of how far I’ve come, and of the people I’m running for: those who live with epilepsy every day, who need support, understanding and hope.
Why Support Matters
Every donation to my fundraising page means more than you know. It keeps me motivated through the toughest training days but most importantly, it helps Epilepsy Action:
- Provide vital information and guidance to people newly diagnosed
- Offer support to families, carers and those feeling overwhelmed
- Train volunteers who give their time to help others feel less alone
- Push for better understanding and awareness in society
I am so lucky to be part of the running community within Epilepsy Action who are taking part in the race next year. We talk online about our experiences and keep each other motivated. It’s been invaluable talking to people who know the challenges you face living with epilepsy. We are sharing tips on training and staying safe on runs including carrying medical ID and extra food and water to manage our condition. To the more fun discussions on music options for our long weekend runs. Pete Tong, Ibiza Classics all the way!
Running a marathon isn’t easy but doing it for a cause I care about makes every step worth it. If you’re able to donate, share my page, or even just cheer me on, thank you. Your support genuinely keeps me moving forward.
Faye Bell is fundraising for Epilepsy Action
To anyone living with epilepsy or a long-term health condition or disability: you are stronger than you think, and you’re not alone.
Here’s to the miles ahead and to creating a world without limits to those of us living with disability.
Respond