Pain stories: Young people with pain and their families needed to talk about how they make sense of pain

Posted in: HealthResSW

Researchers from the University of Bath are interested in talking to young people who experience pain and their families to help us understand what it is like for individuals and their families to live with pain and to learn more about how pain is understood.

Existing research studies have shown that living with ongoing pain can pose different challenges for young people and their parents as well as for other family members. However, what we know little about is how young people who experience pain make sense of their pain and what it is actually like to live with pain on a daily basis. Additionally, we also little about how pain in young people impacts on other family members and how pain is understood by parents and siblings.

In this study, Dr Abbie Jordan and Dr Elaine Wainwright are interested in asking young people and their family members to tell us how they make sense of living with pain and its impact on family life. Using Skype, Dr Jordan and Dr Wainwright will conduct interviews with young people and their families to understand more about how pain is understood within the family and how it impacts on the lives of individuals within the family.

As the study is focused on the experiences of family members, the researchers are keen to talk to:

  • young people aged 11-20 years who have experienced pain for at least three months and their family members.

In particular, they are keen to talk to at least one parent of the young person and any interested siblings.

If you would like to take part in the study or to find out more information, please email the researchers at

Posted in: HealthResSW